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Progress Report

| April 28, 2015
Progress Report

It’s been a couple months since I was really sick and things are finally progressing well.  I am back to training at a pretty high level.  I still don’t have the speed I would like, but I’m slowly increasing my endurance.  Last week I managed to run 53 miles.  I got a really solid brick […]

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My Health Update

| February 25, 2015
My Health Update

It’s been 2 weeks since my angiogram and IV steroid infusions. Luckily the IV steroids worked. My body responded to them and my hand is almost back to normal. I’m still on prednisone and a bunch of other medicine, including blood pressure medicine and my normal plaquenal. Naproxyn and other medicine to keep things in […]

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New Diagnosis

| January 30, 2015
New Diagnosis

So two days ago I had an angiogram to see why my finger was not getting any blood flow to it.  Doctors thought it might be an embolism or blood clot.  Following the angiogram they found that there was not a clot.  That was good news.  My heart and lungs both looked great.  I’m happy […]

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The Waiting

| January 26, 2015
The Waiting

In the words of Tom Petty  “The Waiting is the hardest part.”   My vascular test was January 15.  This past Friday, my finger was burning so bad I had to go to the ER.  Unfortunately, not much got accomplished there.  They sent me home with pain medication that makes me sick to my stomach […]

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I Hate Prednisone

| January 17, 2015 | 0 Comments
I Hate Prednisone

I hate prednisone.  Since I had my most recent flare up, I was started on a 120 mg shot of steroids and now I’m on a taper.  I know prednisone can help so much, but I can’t help but think what damage it’s doing to other parts of my body.  So much doesn’t feel right […]

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The Joys of Having Autoimmune Disease

| January 6, 2015 | 0 Comments
The Joys of Having Autoimmune Disease

Although I’ve written a lot over the last few years about some issues I’ve had with my Lupus, I should have been happier that things weren’t worse.  Recently I started with some pain in my right and especially my fingers.  I wasn’t sure what was actually happening ad kid of blew it off until it […]

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It Certainly was a Crazy Summer

| October 6, 2014 | 0 Comments
It Certainly was a Crazy Summer

I know I’ve been missing this summer.  It certainly was a crazy summer.  It’s amazing how fast it goes by.  The summer was a whirlwind.  The beginning of June I got very sick with the worst stomach cramps I’ve ever experienced.  I ended up in the emergency room and sent home being told I had […]

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Sometimes you never know who will call you.

Sometimes you never know who will call you.

Sometimes you never know who will call you. Today I had an athlete contact me about my upcoming Sprint Triathlon on May 18. The Mighty Moraine Man Spring Sprint will be a new triathlon to the Pittsburgh area. Like the September race, this race will help raise awareness for people with autoimmune diseases and Lupus. […]

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Kids in Triathlon

| March 21, 2014 | 0 Comments
Kids in Triathlon

Triathlon is an interesting sport. It attracts so many different people to the sport all doing it for their own personal reasons. However, when it comes to kids in the sport, what drives them? I started the Get Fit Families Youth Triathlon Team 3 years ago. The team is finally starting to grow and thanks […]

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Identifying your symptoms

| March 20, 2014 | 0 Comments
Identifying your symptoms

One thing I haven’t talked about yet, and this is really directed towards those with Lupus, but also applies to anyone with an autoimmune, you need to be able to identify your symptoms. If you have Lupus, your symptoms might be several of the following… • Painful or swollen joints and muscle pain • Low […]

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Is it an injury or your disease?

| November 11, 2013 | 0 Comments
Is it an injury or your disease?

For the past year, I’ve been dealing with a major hip issue. Everytime I run, my hip hurts. Not just a little pain, horrible pain. The pain affects the hip, paraformis, hamstring, IT band and even the lower back. I finally had therapy, and saw an ortho. I took 2 months off from running and […]

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Sleep and how it affects your autoimmune disease

| September 26, 2013 | 0 Comments
Sleep and how it affects your autoimmune disease

I’m sorry I’ve been away for a while. This summer was so much fun and so exciting. Summer camps consumed a majority of my summer. Coaching kids and helping them to complete their first triathlons or help experienced youth triathletes improve was our focus. It was simply one of the best summers ever. To top […]

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Joella Finished World Competition in France

Joella Finished World Competition in France

Hey Everyone! Sue, thanks for posting I was actually 4th out of the US Women in my age group. Last year I was the 2nd US Woman to finish in my age group, but this was not Spain. This course made the Vegas course 2 years ago seem not so bad. Aero bars were basically […]

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Allergies and how they affect your autoimmune disease

Allergies and how they affect your autoimmune disease

Sometimes you have to learn things the hard way. I’ve lived with allergies all my life. In High School I would get allergy shots. I honestly have no idea if they actually worked, now that I’ve tried to live through them again, my guess is they didn’t work. They probably just made me more sick. […]

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